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 " . . . our mission is to support families and youth with special health care needs as decision makers at all levels of the health care delivery system." Family Voices of Washington
It is estimated that 10.2 million children in the United States have special health care needs. Like other children and youth, those with special health care needs deserve a happy, healthy childhood and youth – attending school, enjoying community events, living with their families, and worshiping with friends and neighbors – as well as the opportunity to become productive adults. However, unlike other children and youth, ours also have challenging health conditions – physical, mental, or emotional – that can make their lives and their families’ lives more complicated. Any child or youth at any time could develop a disability or chronic health condition. We have the latest general news, health news and educational information for special needs, updated each week or more frequently.
Recent NewsIf you are a family member, individual self advocate, provider, agency personnel, or government staff, we would appreciate your participation in the survey. If you are able to distribute this to others in Pierce County or assist someone who experiences developmental disabilities to complete the survey, it would be appreciated. Click on the link below to take the eight question survey. Click here to take the survey.
The study, led by Dr David Williams from the Psychology Department at Durham, found that the mechanism for using ‘inner speech’ or ‘talking things through in their head’ is intact in children with autism but not always used in the same way as typically developing children do. Dr Williams found that the use, or lack of, thinking in words is strongly linked to the extent of someone’s communication impairments which are rooted in early childhood. Click Here to read the entire article
As the concept of the medical home gains increasing attention as a way to redesign primary care, it will be essential for providers to adopt new strategies to better engage patients in their healthcare. Click Here to read the entire article.
Teachers are always looking for evidence-based practices to support struggling learners. The question is, evidence-based according to whom? Textbook and curriculum developers will always claim their product is evidence-based, and educators don't have the time to evaluate all of the resources. Fortunately, there is a source you can trust. The What Works Clearinghouse (WWC) was established by the U.S. Department of Education in 2002 to be a central and trusted source of scientific evidence for what works in education. In our new guest blog, the WWC gives us a taste of what it offers for educators. Check out the What Works Clearinghouse blog at http://nichcy.org/finding-what-works-for-children-with-special-needs
Families for Effective Autism Treatment has an exciting new program for teens in the South Sound. Experience Learning Project (ELP) is FEAT of Washington's model service learning program targeted at teens with high functioning autism or Asperger's syndrome. In ELP, teens work to improve their self-management and social problem-solving skills within a service learning context. Our next meeting is January 20 from 4:30-6:30 pm at Mt.Cross Lutheran Church in University Place. The group meets two Fridays a month and two Saturdays a month. The cost is of this program is very reasonable at $15 per hour for ten hours of therapy. Please contact Ruth Burks if you have further questions about Experience Learning Project or know of families who would like more information. She can be reached at ruthburks@featwa.org. Her phone number is (253) 232-4493. Download the ELP Brochure
The Latest Professional Parenting News
About UsThe Family-to-Family Health Information Center (F2F HIC) is a non-profit organization that helps families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. Because the health care needs of CYSHCN are chronic and complex, parents and caregivers are often challenged with finding the resources to provide and finance health care for their children. F2F HIC is in a unique position to help families because parents of CYSHCN staff/run it themselves, and as parents, they have traveled through the maze of services and programs designed to help CYSHCN. We can help families with our unique resources:
Connecting FamiliesOur goal is to connect families statewide to other families who are experiencing similar challenges in accessing quality services and supports for their children.
 Health Information Center Partners
Developmental Milestones Skills such as taking a first step, smiling for the first time, and waving "bye bye" are called developmental milestones.
Children reach milestones in how they play, learn, speak, behave, and move (crawling, walking, etc.). Take the Developmental Milestones Quiz
Contact: Julie Finholm jfinholm@wapave.org or call 1-800-5-PARENT. / Family Voices of Washington is a program at PAVE. This website was developed with funding from the Health Resources and Services Administration (HRSA) /Maternal and Child Health Bureau (MCHB)/ Division of Services for Children with Special Health Needs (DSCSHN) through grant #H84MC09369. PAVE | 6316 So. 12th St. |
Tacoma, WA 98465
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Welcome to Family Voices of Washington.
