Resources and Publications

This section of our website will provide practical and helpful tools for families and professionals to assist them in better navigating healthcare systems.

Here is a very special addition:
My Child’s Map to Services - Family Voices of WA, WA State Title V and “other” Washington State Parent organizations worked together to create My Child’s Map to Services a template for families. The tool serves as a quick reference guide for families just receiving a new diagnosis of Autism for their child. No parent is ever prepared to hear that a child is anything other than happy and healthy, and a diagnosis of autism can be particularly scary. This tool is for parents wondering about what to do next. There is so much information, good and bad, available on Autism now that we wanted to simplify things for families just beginning their journey. It is available in Cambodian, Spanish and Korean.

 

Helpful Publications

Adolescent Health Transition Notebook

Emergency Preparedness for Children with Special Needs

Health and Recovery Services Administration/DSHS Publications

Your Medical Bills: A Consumer’s Guide to Coping with Medical Debt

 

Other Health Resources

• AccessIT
• Adolescent Health Transition Project, University of Washington
• ARC of Washington
• Attention Deficit Disorder Association
• Autism Network International
• Autism Outreach Project
• Brain Injury Association of Washington
• CaringBridge.org
• Caring for Kids
• CDC Autism Spectrum Disorders (ASDs)
• CDC National Center on Birth Defects and Developmental Disabilities
• Center for Change in Transition
• Centers for Medicare and Medicaid Services
• Center of Human Development and Disabilities/University of Washington
• Children with Special Health Care Needs
• Children’s County Home
• Children’s Hospital and Regional Medical Center Quicklinks
• Children's Hospital Center for Children with Special Needs: Forms, Documents, and Handouts
• CoverTheUninsured.org
• Disability Rights Washington
• DO-IT (Disabilities, Oppurtunities, Internetworking, Technology), University of Washington
• Easter Seals of Washington State
• Epilepsy Care Organizer (Department of Heath)
• Evidence Based Practice Institute (EBPI)
• First Five Fundamentals of Pierce County
• HealthCare.gov
• HealthyChildren.org
• Health Care Authority
• Health Care Transition Resources - the CHAT Project
• Healthy Foster Care America
• Hearing Loss Association of Washington
• Hearing Speech & Deafness Center
• Infant Toddler Early Intervention Program (ITEIP)
• Joseph P. Kennedy, Jr. Foundation - Policy Guide
• Learning Disabilities Association (LDA) of Washington State
• Mental Health Division/DSHS
• NW CHADD
• Office of the Insurance Commissioner
• Open Doors For Multicultural Familes
• Pacific Northwest Angelman Syndrome Foundation
• Parent Help 123
• Parent Information and Resource Center
• People First of Washington
• Public Behavioral Health and Justice Policy (PBHJP)
• Public Employee Benefits Board
• Sibshops – The Sibling Support Project
• State Kids Health Insurance Resource
• Statewide Health Insurance Benefits Advisors (SHIBA)
• Take Charge of Your Health - Online Tool to Track Family Health History
• Tourettes Syndrome of Washington State
• The Tribal Justice and Safety Web site
• WA State Hands and Voices
• Washington Assistive Technology Alliance
• Washington Basic Health
• Washington State Special Education Coalition (WSSEC)
• Western States Genetic Services Collaborative
  
• WithinReach

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Contact: Julie Finholm jfinholm@wapave.org or call 1-800-5-PARENT.

Family Voices of Washington is a program at PAVE. This website was developed with funding from the Health Resources and Services Administration (HRSA) /Maternal and Child Health Bureau (MCHB)/ Division of Services for Children with Special Health Needs (DSCSHN) through grant #H84MC09369.

PAVE | 6316 So. 12th St. | Tacoma, WA 98465
(253) 565-2266 (v/tty) | 1-800-5-PARENT (v/tty) | Fax: (253) 566-8052