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Resources and Publications
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 This section of our website will provide practical and helpful tools for families and professionals to assist them in better navigating healthcare systems.
Helpful Publications
Adolescent Health Transition Notebook
Emergency Preparedness for Children with Special Needs
GeneFacts Fact sheets for Down Syndrome, Achondroplasia and Spina Bifida funded through the Congenital Conditions Program
Health and Recovery Services Administration/DSHS Publications
Language and Early Literacy Activities: Free and Reproducible
Neurodevelopmental Centers of Washington
Oral Health and the Medical Home from the National Center for Medical Home Implementation
Should My Child Take Medicine for Challenging Behavior? (Autism)
Your Medical Bills: A Consumer’s Guide to Coping with Medical Debt
Family Matters: Promoting Health and Wellness for Children with Special Health Care Needs Family Booklet
Other Health Resources
- 2012 Social Security SSI/SSA Cost of Living
- AccessIT, University of Washington
- Adolescent Health Transition Project, University of Washington
- “notebook” about adolescent health transition
- “notebook” about adolescent health transition
- “notebook” about adolescent health transition
- “notebook” about adolescent health transition
- AMCHP's National Center for Health Reform Implementation
- ARC of Washington
- Arc of Washington Blogspot
- Attention Deficit Disorder Association
- Autism Network International
- Autism Outreach Project
- Autism Outreach Project
- Brain Injury Association of Washington
- Camp Prime Time
- Caring for Kids
- CaringBridge.org
- CDC Autism Spectrum Disorders (ASDs)
- CDC National Center on Birth Defects and Developmental Disabilities
- Center for Change in Transition
- Center of Human Development and Disabilities, University of Washington
- Centers for Medicare and Medicaid Services
- Children with Special Health Care Needs
- Children's Alliance
- Children's County Home
- Children's Hospital and Regional Medical Center Quicklinks
- Children's Hospital Center for Children with Special Needs: Forms, Documents, and Handouts
- CoverTheUninsured.org
- Disability Rights Washington
- DiversityRX
- DO-IT (Disabilities, Oppurtunities, Internetworking, Technology), University of Washington
- Easter Seals of Washington State
- Epilepsy Care Organizer (Department of Heath)
- Evidence Based Practice Institute (EBPI)
- EZ Info Cards
- Family Medical
- Find Your Legislator-Washington State
- First Five Fundamentals of Pierce County
- Free Asthma Materials
- Good Karma Applications - We Create exceptional mobile technology to empower individuals leading exceptional lives.
- Guía Para los Servicios de Mi Hijo
- Health Care Authority
- Health Care Transition Resources - the CHAT Project
- Health Literacy-HRSA
- HealthCare.gov
- Healthy Foster Care America
- HealthyChildren.org
- Hearing Loss Association of Washington
- Hearing Speech & Deafness Center
- Hearing Speech & Deafness Center
- Infant Toddler Early Intervention Program (ITEIP)
- JED Foundation
- Joseph P. Kennedy, Jr. Foundation - Policy Guide
- King County Asthma Resources
- King County Mental Health Services
- Know the ADA . . . Guide to Autism
- Learning Disabilities Association (LDA) of Washington State
- Let's See Sign (Sign Exact English)
- Limited English Proficiency--Civil Rights
- Medical Home, Washington State
- Mental Health Division/DSHS
- My Child’s Map to Services
- National Center for Cultural Competence
- National Center for Project Access (NCPA) at the Epilepsy Foundation
- National Healthcare Transition Center
- National Human Genome Project
- Needy Meds
- Nutrition for Children with Special Health Care Needs
- NW CHADD
- Office of the Insurance Commissioner
- Open Doors For Multicultural Familes
- Pacific Northwest Angelman Syndrome Foundation
- Parent Help 123
- Parent Information and Resource Center
- Parents Empowering Parents
- PAVE
- People First of Washington
- Public Behavioral Health and Justice Policy (PBHJP)
- Public Employee Benefits Board
- Sibshops - The Sibling Support Project
- Special Olympics Washington
- State Kids Health Insurance Resource
- Statewide Health Insurance Benefits Advisors (SHIBA)
- Take Charge of Your Health - Online Tool to Track
- The Tribal Justice and Safety Web site
- Therapeutic Horse Riding Locations in WA State
- Tourettes Syndrome of Washington State
- TRICare Youtube Channel
- UW Dental Referral Service
- UW School of Dentistry Special Needs Fact Sheets for Providers and Caregivers
- WA State Hands and Voices
- Washington Assistive Technology Alliance
- Washington Basic Health
- Washington State Special Education Coalition (WSSE)
- Western States Genetic Services Collaborative
- Western States Genetic Services Collaborative
- WithinReach
Contact: Julie Finholm jfinholm@wapave.org or call
1-800-5-PARENT.
Family Voices of Washington is a program at PAVE. This website was developed with funding from the Health Resources and Services Administration (HRSA) /Maternal and Child Health Bureau (MCHB)/ Division of Services for Children with Special Health Needs (DSCSHN) through grant #H84MC09369.
PAVE | 6316 So. 12th St. |
Tacoma, WA 98465
(253) 565-2266 | 1-800-5-PARENT | Fax: (253) 566-8052
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